So, they ask us to show up at 7:15 to head up, by 7:30. An entire hour past his typical bedtime, I finally get annoyed enough to speak up and get us up and started. Although beat, he chills in the waiting area.
I had to go to admissions, the same room and chair from when we signed him into the NICU for WAY too long. The memory of being two days post delivery, emotional, beat up, exhausted, and losing my mind all flashed before my eyes. It sucked. Those things I block out, I'd like to keep out. The scent, the sounds of the hospital, made a rough start. I texted my sweet friend that never got to take her baby home. :( Which put things in perspective for me. She came to visit us while we were in the NICU, I have no clue how she walked through those doors. It's hard to go down paths we block. I was steps away from my parking spot on the way into the hospital where I came to realize it might be possible my son has Down syndrome. It's strange how you'll never forget where your feet stood when those life changing events take place.
"Mom, why are you doing this to me again...and smiling about it."
Finally, this tired boy was in his room by 8 and ready to get all wired up. The first hour went well, the last thirty minutes, not so well. He had had it, it was 2 hours past his bedtime and we were having to hold him down to prevent him from pulling wires off. It breaks my heart. I find it all very interesting but I just wish it could be me not him. At least this time they had a crib for him and a cozy bed for me. I got about two hours and he maybe 3-4. The "nurse" (not sure, maybe tech) was great which helped. Last time I took him to a sleep study there were 2,000 red flags I ignored. It was in some ghetto place in Tampa, no crib, a 3 hour hook up, insensitive tech, NO sleep that night, pointless. No results. "All is well" but my baby slept for 20 minutes at a time for a month, no...sorry, not "all's well!" So, this was better. Hopefully results in another week.
This was in the am before she took everything off. Then he screamed for another 30 minutes while she did that. Poor sweetie. I wanted to a few pics of the process, but I needed to entertain him. I'm going to try to find his last sleep study pic. It was Nov 28 of 15, and WAY worse than this experience. So all in all, good experience. Hopefully it can give us some direction. Many with Down syndrome have sleep apnea. I don't think he does, but what do I know?!
