Mommy/daughter date

I needed to get my nails did before my trip to CA. I took Clara to get her toes painted. She was aprehensive this time, I think because a man was doing her nails. Another woman in the salon told Clara he was a very nice man and does a good job, and about 10 minutes later she caved, but she had to hold onto my hand the entire time. 

Pretty pink fingies.

She loves her San Clamente shirt with the mermaid we got her, it was so easy to shop for her while we were away, it's so fun finding souvenirs. (flash forward)

Donut treat, decorated for spring, or post st. pats day green frosting.

Bubby the dog

Silly kids

Headed to grandpa's and it appears I forgot to take pictures this trip.

Except this one. Thanks for a great day full of yummy meals tiger and al!

Gosh, I think this a lot!

Drawing pics on the drive.

Home, another day, enjoying nutella. 

Everett, my lil cowboy, after leaving grandpa's house.

Family stretching. Everett loves to join in. He's one flexible little man! 

She's not trying to strangle her bubby, she's trying to get him to look at the camera. Ha.

It's glimpses like these that kit me and I wonder how all this has happened these past few years. It's pretty crazy. 

This little man LOVES his bath splashing!

My cuties in their Cuba Lake shirts from Aunt Brandi and fam...

Sydney covered a day for Abby, our current sitter. She had some fun with Clara on snapchat. 

This one scared Clara

Everett is such a snuggle bunny. 

Enjoying our first spring shower of the year, in all her gear! 

Normal, every day attire. 

Everett is so comfy folded in half. 

He would rather eat his shoe than the Publix cookie. 

Oh. My. God.

I was looking for sleep study pics and came across this. Everett, I forget how chunky and squishy you were. Can I please squeeze you back to this shape and size? I want to snuggle this little bunny again!!!!! :((((((((( I miss this little baby. About a month and a half here...OMG! 

1st sleep study

This was the little man 11/28/15 at his first "sleep" study. His protection keeping him in bed was teddy. No tape to keep that thing on his face, like he wouldn't rip it off?!/ Peeps be crazy. 

Sleep study - 4/5/17

So, they ask us to show up at 7:15 to head up, by 7:30. An entire hour past his typical bedtime, I finally get annoyed enough to speak up and get us up and started. Although beat, he chills in the waiting area. 

I had to go to admissions, the same room and chair from when we signed him into the NICU for WAY too long. The memory of being two days post delivery, emotional, beat up, exhausted, and losing my mind all flashed before my eyes. It sucked. Those things I block out, I'd like to keep out. The scent, the sounds of the hospital, made a rough start. I texted my sweet friend that never got to take her baby home. :( Which put things in perspective for me. She came to visit us while we were in the NICU, I have no clue how she walked through those doors. It's hard to go down paths we block. I was steps away from my parking spot on the way into the hospital where I came to realize it might be possible my son has Down syndrome. It's strange how you'll never forget where your feet stood when those life changing events take place. 

"Mom, why are you doing this to me again...and smiling about it."

Finally, this tired boy was in his room by 8 and ready to get all wired up. The first hour went well, the last thirty minutes, not so well. He had had it, it was 2 hours past his bedtime and we were having to hold him down to prevent him from pulling wires off. It breaks my heart. I find it all very interesting but I just wish it could be me not him. At least this time they had a crib for him and a cozy bed for me. I got about two hours and he maybe 3-4. The "nurse" (not sure, maybe tech) was great which helped. Last time I took him to a sleep study there were 2,000 red flags I ignored. It was in some ghetto place in Tampa, no crib, a 3 hour hook up, insensitive tech, NO sleep that night, pointless. No results. "All is well" but my baby slept for 20 minutes at a time for a month, no...sorry, not "all's well!" So, this was better. Hopefully results in another week. 

This was in the am before she took everything off. Then he screamed for another 30 minutes while she did that. Poor sweetie. I wanted to a few pics of the process, but I needed to entertain him. I'm going to try to find his last sleep study pic. It was Nov 28 of 15, and WAY worse than this experience. So all in all, good experience. Hopefully it can give us some direction. Many with Down syndrome have sleep apnea. I don't think he does, but what do I know?!

Tiny feet

I can't believe how big this tiny foot is. ;)

So excited to go to Grandpa's to swim! 

Practicing with scissors, she did well for try 1. I think because we limit her to a chair to do arts and crafts she is less interested and her OT skills are pretty poor. 

More projects. 

Awe....conked.

Two of them.

Bubby loves waking his sissy.

Banana bread, nunu helping of course.

"Mommy, take a picture of me and send it to daddy because I'm being such a good listener." She did great this past OT session, after the speech session. I don't give her enough credit. Love you sis, you're a rockstar! 

Possible gate trainer we may get him. I'm nervous he'll rely on it. I'm going to PT tomorrow and she'll give me/us good guidance. He had fun tooling around, he picked up on how to navigate fast. 

Again, so small, I want to remember her this small forever, since it's flying by! We race on our way in, and on our way out every day. She was very annoyed I took a picture instead of raced.

Of course sissy will "help"