Clara and Everett

Clara and Everett

Monday, May 23, 2016

Welcome Fiora Capri Poecello

May 19th at 3:55am Fiora joined the family on the outside. It was strange, I fell asleep early that night and Bran sent a text at 10. I woke up out of nowhere and checked my phone at 4 and text her. She was born five minutes before my random wake-up. I was able to talk to the new mama of two, I just wish I could have been there. I knew it was a girl the whole time, or rather, had a very strong feeling. 

I hope my memory doesn't fail me but I believe she was 6 lbs. 8oz, 19 inches long with some dark Italian hair! She is perfect. Elsa is going to love being a big sister and Brandace and Nick are going to be the best parents for these two little girls. 

Welcome to the family Fi, we've been waiting for you! You're so loved. Aunt Barbie can't wait to get her hands on your in one month!!! No growing until then little chicken! 


























Saturday, May 21, 2016

Is summer here yet?






Everett loving the "bubble snake" I made! OT said to let him have at different textures, here's one he loves! 




THIS FACE

no this face



nooo this face, there are too many I love







wait, what about this one?





At the disability fair. It was almost a bust. It started with me slamming my finger in the car door. We got there at 10 so we could get home for naps, it was supposed to "start" at ten. Vendors were still setting up. It was so half asked. We pretty much drove 45 minutes for Clara to eat a cupcake. Then during one of the really long pointless speeches that I am imagining only I was listening to the lady mentioned that there was a Down syndrome group serving lunch in the cafe which we "missed" because it didn't look like anyone was in there. I learned of a few groups, none of the meetings I can make, but I have some new connections on facebook, and some local mama's I hope to reach out to this summer. I want to try and connect with as many people as I can, get as many resources as I can, sometimes I feel alone in this...so I thought it was a good idea. Andre went along with us, although I know he "knew" it would be a bust. I was glad we went, I think it opened a few doors for us...me.

Oh, another perk, Clara got to tour a firetruck. 





Clara is enjoying herself at least.
Bub's stitches almost healed. He had the cyst removed when he had tubes put in, it's taking forever to heal.


Sissy has been so extra sweet lately, wanting to hold Everett and experience things with him. It wasn't enough that he was swinging next to her, she wanted him in with her. That didn't last long. 19 lbs in a lot on her 24lb body. 













I like this for one day. It will make for good/funny convo at dinner.





Going to visit friends. Thanks for having us over, Liam! 

Elsarooski helping a prego mama garden. SO cute.


Where's my new baby?





She's getting too big! 



Someone loves to splash! 





We decided to grab a bite to eat after Everett passed his hearing test. It was a lot of fun, chaotic, but fun! 





I love that he lets her hug him so tight. Not that he can do anything about it, but he doesn't seem to mind.


"I'll massage you Bubba!"


In many, many moments. I need to remember this! 




Andre got the cabinets up! And the "wine" bar. (Eeek, can't wait to get that light fixture down!)

This feeling


I have such an array of emotions filling me at Everett's (almost) one year mark. This picture has been my wallpaper on my phone for a year for a reason. I remember exactly how I felt in this moment. I remember thinking life couldn't be more perfect. I didn't think life could ever get better. Holding my perfect baby boy in my arms for the first time, being able to share him with his big sissy, I was thanking the Lord, one person I'm never quite sure of, but in this moment I was thinking He must exist if He gave me all of this. 

I made this my wallpaper for a reason. That feeling was soon ripped from under me. It was only about an hour later that my life would flip upside down and I'd be on a path I never thought imaginable. Watching my brand new baby boy almost die and most definitely suffer for a straight month and then some was an outer body experience. The helplessness I felt day in and day out is a mother's worst nightmare. It's a part of my life I'm quite numb to, even now. If I let myself go there, I crumble, in a split second. Yet, in the moment, I was steadfast and pushed on knowing I had no choice in the matter. I made this picture my wallpaper because in my MILLION weak moments I'd click on my phone so this picture would pop up on my screen and it would take me back to this bliss and erase all the fear and pain I was enduring, even if it was just for a few moments. I needed this picture more than I needed anything, I needed this feeling, the feeling of perfection, the carefree life that I once took for granted. I wanted that back, I would give anything to go back and have it be different. I wanted someone to pinch me, at some points I was sure it was a bad dream I would wake up from in a dead sweat.

Over the course of a year this picture has helped me through a range of trials and emotions, and what was once an escape, is now a comfort. I won't ever forget the ease I had in life during that moment. I won't ever forget the whirlwind months that followed. Life is far from comforting, I live with a lot of worry of the unknown that I never knew was possible. I really never thought I could fear so much. I used to have what I thought was true "fear" after I had Clara. I've never been much of a worrier until I had kids. I stress over everything these days, I want to give my babies everything, I want to make it perfect at this one chance I have at motherhood. I want to make sure I don't miss out on anything that could better the lives of these two precious beings. 

This picture now gives me peace. After losing my mom I thought I would never take life for granted, but I did, and still do. I strive to cherish each day and live it to the fullest, I try not to sweat the small stuff.  I didn't think I needed any more reminders as to what is truly important in life but I clearly did, and do, daily. It's so crystal clear to me these days, although I do still slip. This picture now gives me a feeling of when life really began for me, when the true meaning motherhood was so very evident. I'm the luckiest mamma to have this boy to call my own. His smile lights up my day one hundred times or more. His snuggly warm body and sweet, patient personality teaches me things I never even imaged I'd come to realize. He keeps life in perspective for me, what more could I ask for? I get to see his hard work and dedication to learning all day long. The things we all take for granted, the little things he works so hard at, he makes me so proud and keeps me grounded. Yes, I do have new stress in my life, but it's real, things that one should really worry about. The nonsense I once thought was worthy of worry is almost comedic. I'm so thankful for that. 

Don't get me wrong, there are days that I go back to the "why me", when I wonder why I was chosen for this path, when I worry I won't do it right. I don't last there long, all I have to do is look at him. He trusts me, I don't know why, but I can tell he does. I'm the lucky one. I feel my crows feet on my face when I smile, I've never felt that. I smile so hard because of him I think to myself, "Don't smile so hard, you're making wrinkles." I've never had that problem until Everett, my little Bubba. Sometimes I worry about what he might not get or what he might not be capable of, or my biggest fear, someone hurting him. I can quickly remind myself of what he will be capable of, with the fight and determination this little man has shown in his first year of life, I'm positive he'll do great things and have the strength he needs to endure what's to come. He has taught me more in one year that most learn in a lifetime, about what really matters in life. He has brought us so much joy in this short time, I can't even begin to imagine what our future holds with him. I remember crumbling when I learned he probably wasn't going to make it on day three, I remember crumbling harder at the diagnosis of Down syndrome, and although I have many fears for what's to come, I'm hopeful, so very, very, hopeful. 95% of our time is pure joy. I feel like I'm able to really live in the "now". 

May 28, 2015 will always hold a plethora of emotions for me, I'm thankful for all of them. I'm so very thankful for YOU Everett Lang Feger. You are pure joy! 


Sunday, May 8, 2016

Spring has Sprung

I'm so lucky to call this man my husband. He's one of the hardest workers I've ever met. He is happy and funny and passionate. He is the best daddy to his babies and loves them so deep. Here he is sweating his booty shaker off making a loft so we can have more storage so we can make a "back yard" for the kids and host the slide, swing, sandbox and water table in the garage. Pretty ghetto, oh well. 





Someone loves bubbles. OT encouraged me to let him touch all kinds of textures, this was one of them. I made a "bubble snake" out of a water bottle, sock and dish of soap. When you blow through it, it makes a big long puff of bubbles. He loved it, but loved to eat them most. 













Clara let me braid half of her head. 











We drove 45 minutes to get to the disability fair. I was hoping to make some connections and hopefully find anything and everything local that I can go to or use to help my little man grow. It was a bust, until the end. Clara got a cupcake, that was her success. I slammed my finger in the car door as soon as we got there, that was my low. She got to tour a fire truck, that was neat for 10 minutes. Thankfully at the end I hear one of the announcers say that the Down syndrome group was serving lunch in the cafe. We didn't head that far so we did and I met some mommies. They were very nice, I got a load of information. They meet every Tuesday at the first of each month. There are some mommies from St. Pete. Siblings come too. I was really excited until I realized that I won't be able to go. The first of June is the kids last day, first of July I'll be home for Gram's memorial and the first of Aug we're already back to school since we're starting earlier this year. Booo!