Clara and Everett

Clara and Everett

Wednesday, August 31, 2016

It's these posts...

It's few and far between that I get caught up in the day-to-day nonsense anymore. I've got great focus on what matters and am SO thankful for each moment I have with my family and make sure quality time with my babies happen. I put housework aside, school work aside, social life aside to enjoy every moment with my sweeties. Until they're in bed of course, and then the next three to four hours is devoted to attempt to accomplish any task outside of being a mom. Don't get me wrong, I have my moments where I feel I fail at it all, going back to work has brought those weak moments on more frequent. I have my mother's voice in my mind when I get caught up in unimportant things. When she was in her last stretch at home, living in the hospital bed in the living room, she took my hand and looked into my eyes and said, "I wish I would have played more." We didn't go to the park, rarely went on vacations, we didn't have family game nights or mommy daughter dates. We cleaned Saturday mornings while listening to Casey Kasem and played with our cousins on Friday nights when the parents had fun themselves. She was the school guidance counselor and worked all summer to perfect the schedule although unpaid. She did the books for my dad's cookie business, cooked a new meal nightly, had a clean home, coached softball, kept us involved in sports and activities, took us to all appointments, she DID do arts and crafts, let us have sleepovers, took us on vacation to Myrtle Beach MD even when my dad couldn't go, made time to help me with my homework, "motivated" me to never quit anything I started, made me practice my clarinet and piano...the list goes on. She was a busy woman, she had no choice, I wouldn't have changed it for anything in the world. Would I have enjoyed more time with her? Of course, but I only have fond memories of my childhood. Would life have been better with more quality time with her, yes. I try hard to make sure I play hard with my kids, all the time, so I have no regrets. I don't want to feel that emptiness I saw in her eyes on my deathbed. 

So, with all of that said, no matter how hard we all try, we will all (most of us) feel like failures as moms, no matter what we do with our time. I'm constantly struggling to make sure I give both kids enough attention, trying to make sure with Everett's special needs that Clara still feels special. I never feel like I do enough and I'm constantly scraping the surface of everything I need to get done between the house, the kids, therapy, work, my marriage, etc. Since I've been at work I've not been on facebook as much since I don't have the time, I typically get on when I'm feeding Everett at night or early morning after I feed him and rock him to sleep. I love seeing all the other families of kids with Down syndrome. We watch each other's kids grow, ask questions, vent, support, and although there's lots of positive posts, I come across "these posts" regularly, which keep me in check when my mother's voice fades into the distance with the business of life.

My point is, no mom is perfect, it's an impossible task. No matter how long you or your kids live, it'll never be long enough, we'll always want more time. When the small things in life start to take attention away from what's truly important, we need to stay grounded and soak up the small stuff. 

It's these posts...

that send chills down my spine, 
that propel instant tears down my face,
that cause me to quietly cry as I hold Everett and feel my body shake from utter sadness, 
that bring back memories my brain purposefully avoids,
that make me want to hug both my babies so tight and freeze time to ensure they stop growing,
that make all the dumb things in my life melt away,
that make me want to sleep with Clara every night since she asks me,
that make me feel less guilty for rocking Everett instead of having him self-soothe, 
that make me feel guilty for every time I let Everett self-soothe,
that make me want to be a stay at home mom so I never miss a moment,
that make me happy that I give my kids so much of my attention, 
that make me want to give my kids more of my attention, 
that make me want to be a better mom,
that make me love my phone and facebook for allowing me to stay real, 
that make me put down my phone, stare at my perfect baby and soak in every inch of his sweet body,
that make me question a higher power, 
that make my heart break, not just for this mom, but for every mom who has lost a baby...

I just don't know what I'd ever do. 




Back to the grind :(((

Lisa and I are job-sharing which I've mentioned. This was right before the meet-and-greet. We're "ready to go", as ready as we'll ever be. I couldn't be more thankful for all this amazing woman does for me. It's been great, mainly because I get to see her daily for a half an hour. We're both there for four hours. She is 7:30-11:30 (but always stays late, waaaaay too late!) and I come in at 11 until 3. Our schedule ended up being great and the kids are at specials while we overlap for 20 of the 30 minutes which is perfect. I truly don't know how people like her exist and I don't know how I was the lucky one chosen to be her bff! I love you Lisa Cotilla. 



Look at this grandpa...Zims had a garage sale at Grammys. As difficult as that must have been, these two little chickens light up the world, even in the saddest of moments. 



I miss these sweeties!


Awe, grandma whispering that little Fi to sleep, and Elsa...TOOOOOOOOOO BIG!


All tuckered out! 

I took the kids for a very hot walk after work so Clara could go play at the park. You can't see it here but it started pouring rain a moment after we got there. So we played in the rain! Thankfully daddy came on his way home from work to pick us up! 



Hey ma


Didn't have the Bubs car seat of course so this was the arrangement for the mile drive home. Clara claimed she was smiling. I showed her the picture and she wanted a redo. 


Much better! I think Everett likes facing forward. I'm going to try and keep him backwards until he's 2, that's what's recommended, since he's a bit short it's been easy so far. 


Sprinkler time! Still h-o-TT




Blowing bubbles and popping them from her bubble gun as she runs through the water...










A funny app Clara loves to do! 




It swaps your faces, this is creepy!!!!!!!!!!!!!



This little lady, on our way to therapy. She's such a sweetie pie. Her bubs needs so much attention and she rolls with it. Thanks sissy, you're a rock star sister! 



What? Therapy? Again? I had to wake him to go. That makes this mama angry, I hate waking my babies. He's always so happy, the moment he wakes up, even with a soggy diaper and no breakfast. 


They've been "playing together" here and there lately, it's so fun to watch. 

Who doesn't want to have breakfast for dinner after swimming with a cape and hat?


"This is delicious mama!" I love her sweetness. 


Love that sweet face, she gives such great hugs and kisses. 


The park was dead, it was amazing. Bubs roamed and Clara and I ran and played. Look at this face...I just want to snuggle him so close all day. 












"I got this dada, look, they're on!" Yes, Clara, they are on! Silliness. 


Everett was not very motivated by his toys, we play with them EVERY day, learning how they function..."Everett, put in, take out, push, turn, get..." He needed a few new items to keep him motivated to learn. So "Santa" came for the kids and brought some new goodies. Both love them, great educational new things making play a lot more fun. 


After nap, they got to open. Love these matching jammies. 

























This is an "old" toy from the Fegers, oldie but goodie, he loves the drum! 

Saturday, August 6, 2016

Other videos I'm not sure if I've posted or not... :/

Sorry if repeats 
































Giggle Vids

These kids make me happy! SO happy!

Clara always loves to tickle, her famous words I still need to record, "TICKLE, tickle, tickle, tickle..."


Please excuse my unshowered self. Everett just started this belly laugh lately. He knows when I'm messing around with him and finds it very comical. Such a cutie pie! Don't let Clara's "DADDY, I NEED YOU!" in the background take away from the video. She was clear the attention was not on her. 





First week back :(

My first week back and Clara gets sick. :(((( Of course. What the heck?! She's been a little hard to deal with for the new sitter, Kelly. Thank goodness I'm half days, but it's hard. We're doing everything we can to keep Everett from getting this, then all hell will break lose. He has felt warm the past few days so I'm just waiting for it. Next week on Wednesday we get the kids, I'm sure he'll hold out for a Tuesday night show if things go as they usually do. PLEASE no! 


Poor baby. It's so hard to get her to relax, this lasted ten minutes. This girl is on the go, no matter how she feels. 


Her hair was dried to her face from all the snot day two so we washed it and braided it to keep it out of the way. She blows her nose so hard and so well, it really helps! She is also so good about taking medicine. 


She kind of holds still on her potty. 



Aunt Barb sends books in the mail through highlights. Clara loves to get them! Thanks Aunt Barb!




She sits right down and gets busy! 



Tile guys fixing a small spot in the kitchen, lots of noise. We came upstairs to give them some competition. Cute Boston T-shirts from aunt Lisa. 







"Mama, can you make me a tent for my ipad with pillows and I have to wear my goggles so I can see!"