Clara and Everett

Clara and Everett

Friday, March 30, 2018

Easter Break with my babies

There is no price tag on being home with my babies. All week I felt so happy being with them 24/7 and felt like I had a great grasp on life without work. I wish this was my life all the time, it would be the best life.

Nails did for girls night while daddy took E to therapy.



He faces forward in daddy's truck in sissy's car seat and left his hat on and looked super cute.


Someone is happy to be at therapy over spring break!

Daddy sending us off!

Everett's foot, I wish I had emojies for these pics.





Trying new slime recipes


Making chicks and bunnies


EVERETT DECIDES TO WALK TODAY


After Everett walked Clara showed me how big she was not needing the step stool which of course is picture worthy too!

After E's ENT check up we went to the pirate ship "playground" which Clara loves so much so it's great incentive to have that to do after another appointment of Bubbies. It's the same building and hallway we walked each time for the NICU, it'll never have another feeling for me, no matter how many times I walk down it for other reasons, all I think about are those times and the walk out the day we were released.


Trying to get him to smile I asked where his teeth were...Kind of worked.

Clara made a friend and they had a lot of fun together. We stayed for 45 minutes and played on this darn thing. The weather was so very perfect.


Daddy's storage partner, trip 89, jk.


We watched Charlie and the Chocolate Factory and she was super scared about the boy going up the tube after he fell in the chocolate. She watched the whole thing, and then again the next day and then after that she said it was too scary because all the kids that got in trouble and had strange consequences that she didn't like.

Her face says it all, I got a good video too.


Monday I canceled therapy for our one day off that week and we went to the beach. We saw Bonnie, Lisa and Ed!



My favorite part about being home with my babies is snuggling them, watching and listening to them sleep.

Wednesday, March 21, 2018

World DS Day 2018

We celebrated this little Bubba and thought about all those with DS on 3-21. We went out to dinner to get some yummy pizza that he loves and he ended up eating mashed potatoes instead. Ha! There is no greater gift that my kiddies and I can say with the utmost certainty that our son having Down syndrome is only impacting our family in a positive light and we're so thankful for having our eyes opened to a new world we never knew existed. Thank you Everett, thank you for being ours and making our family complete.



This was my Facebook post. I will post more later about personal specifics that happen throughout her day. We had a great day celebrating every one with down syndrome, especially our little nugget.

We celebrated World Down syndrome Day today in many ways. We (students, family, and friends) wore crazy socks. We spent quality time doing what Everett loves most as a family tonight. I educated my class who educated their families. I got warm messages and reminders that the people that surround us value my son. Thank you!

A day in the life of an almost three year old cutie pie boy with Down syndrome = a 6:45 wake up call for his first therapy session at 7:30 for Speech-feeding. He is working hard trying to transition to a sippy cup similar to a regular cup. He is also learning to feed himself and is not a fan but flirts and makes us laugh instead of complains. We then have one minute to get to PT where his gross motor skills are pushed and tested for 60 minutes, mind you he has an ear infection but plugs along like a champ. We get home for a quick meal before his third session begins with an interventionist from the state who comes to “play” with her favorite client and she works on PT, OT and Speech-language. Finally, by 12 he gets his much needed nap.

He has 10 therapy sessions a week. Some days we go downtown twice. He has 7 sessions downtown and three at home all one hour in length, oh, and Speech school on Monday for an hour and a half. He shows up for every session and brings his A game.

I share this because not everyone knows they are seeing a warier when they see someone with Down syndrome. They work their hardest all day, each day, since the day they are born to do all the things many of us take for granted.

Everett reminds me every day it’s the little things that matter. This being the best gift I believe I’ve ever been given. He brightens everyone’s day and makes me beam with his silly toddler behavior and I’m supper proud of his hard work and dedication. He has opened doors to new opportunities and friendships I wouldn’t have known without him. I’m so thankful of the community we have that supports our goals.

People with Down syndrome bring a light to the world that is much needed. They have so much to teach the rest of us if we take the time to notice. We are so much more alike than different. I hope today, and every other day, we let one another shine for who we are and lift one another up. I can promise you Everett will!

Saturday, March 17, 2018

More Fair 2018




Who doesn't want to do leftover sparklers from last July after a day at the fair in xmas pjays?!