Clara and Everett

Clara and Everett

Friday, August 18, 2017

"Sleep" study 8-15-17

I was dreading this week not only because it was our first full week of school and I wasn't comfortable with Clara being at school yet, but also because Tuesday we had a jam packed schedule. Two therapy sessions in the am, work, rush home, sleep study. 

Our first sleep study in Tampa was horrible. Our second one went well, the tech left us alone. This one, not so good. You can see the stack of wires behind him. :(

The tech was nice and understood his fears, she put a blanket on the floor and I brought his toys and DVD player down for distraction. She cared about Everett and was nice, but I struggled with her later in the night. I asked to go in early because they typically start at 7:30 and it takes a good two hours to get hooked up and settled. We started at 6:45 and we still weren't settled until 9:45 after hooking him up, wire issues and then a big poop made by Everett from losing his patience in the last 30 minutes. I don't blame him one bit, he was so patient for SO long, way past his bedtime. 



I didn't think he would like his "boxing gloves" aka size one diapers taped to him but he didn't mind them one bit, he even found them entertaining. He's such a good boy. He had some quick hands from the start and we both agreed getting his hands wrapped up would really help the process. 

I warned the tech he was a light sleeper. I don't know if she understands what that means. 



















He has lines all over his head, chest, neck, behind his ears, back, heart, legs, there are leads coming out of everywhere. It must be SO uncomfortable.



Still my happy boy though. 





Until the nose canula went on, that just ticked him right off. It all was downhill from there. Those things NEVER stay in. So, the tech woke him up three times to fix that and another multiple times RIGHT, I mean DIRECTLY after I got him to sleep. She would come in to "check" and the hall light and her not so whispering voice woke him. I was trying to soothe him because if I let him self soothe, he would get so mad and knock the wires and such out and then the moment he settled, she'd come in to fix all he he screwed up from crying and thrashing and would wake him up again. This went on all night. I got him to sleep 3 times, I felt so bad for how tired and uncomfortable he was, she continued to wake him, for no good reason. She didn't need to fix anything, she would come in for the most obnoxious reasons so by 4:30 when he only had an hour of sleep and I had none I kinda wasn't so nice to her. I let her know if she wasn't going to leave us alone I wanted to leave. I asked if we would have enough data to even read anything or if all of this was for not. She said if I could get him back to sleep from 4:30 to 6 we'd probably have enough. So I told her to stay the heck out and of course things were fine from 4:30 - 6. I have an appointment next Wednesday for the results. I'm quite curious what on Earth could come from that mess of a night. We got home around 6:30. I helped get Clara ready for school, took a shower, and was able to get Everett to sleep by 8:30. He woke at 10:30 for his therapy but was too tired so I had the sitter take him right back to sleep. He slept for about 3 more hours and then was a bit happier. At least I have ZERO down time at work so there wasn't much  time to get tired. I don't think I'll ever have energy again. 

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